IMPF calls for urgent funding fixes for rare disease patients

The Indian Medical Parliamentarians’ Forum (IMPF) is waving a big red flag! They’re calling on the Prime Minister to fix funding issues that are delaying treatment for patients with rare Lysosomal Storage Disorders. With over 60 lives lost and nearly 100 more at risk, they say the current one-time aid of Rs 50 lakh just isn't cutting it. Continuous funding and better accountability are a must!